It has been two years, and we have settled into an Aubree normal. We still go to the Dr way more than the other children and we deal with diarrhea every day, we get to go see a dr for that soon and she will probably have a colonoscopy. She had dental work done in the OR and the dentist thinks that her permanent front teeth will be damaged. She still won't eat much of anything and will start food therapy soon. She loves her sippy so she can drink her meal. But this is her normal. We have gotten use to it, and we are thankful that she is here for us to enjoy everyday!
Thursday, October 11, 2012
Thank you to who ever it was that came up and took a picture of Aubree for me! With three kids in a large crowd I was not able to take many pictures, and Aubree was on a role that day and didnt want me to take her picture. So I am very thankful that someone saw her and came and took her picture, and when I was trying to get all three kids behind the poster, that someone came up and offered to take the picture for me! You can see in that picture just how much they did not want to take pictures. I have many things that I can say about the walk but they are not good, and this was a good cause so I will not say them. Maybe if I decide to participate next year I will have a better experience. I dont want to sound like a brat, and if I said all the bad things then I would and it would take away from all the good that was done that day and the children that are and have gone through cancer.
Thursday, September 20, 2012
Friday, September 7, 2012
I don't know why but I never said that Aubrees echo was good. She doesn't seem to have any damage done and has a perfect heart. The only thin that concerned me was that they thought she still had her line in, I don't know if that is scar tissue or what that means, but I don't think it's anything that I need to be concerned about.
Tuesday, September 4, 2012
Aubree had an echo cardio gram done today. I was really nervous about it because the chemo could damage valves in her heart. We went in bright and early at 7 am, which I prefer, and got ready for some sedation. Thats why I like the early time if she can't eat. She was a trooper, she did everything that was asked, and it's funny cause she knows what to expect, when she was getting weighed she asked for her Cheetos, and I was sad cause she had to wait till we got to Oncology not Cardiology since that is where she was being sedated. The dr pulled out the stethoscope and she stood up tall and still for them to listen to her and held out her finger for her pulse ox, and got right up on the scale.I didn't think with her starting treatment so early that she would remember how to do all that stuff but I guess we go enough still that she remembers just what to do. Today she got a wagon ride to clinic since she had been sedated, she was to loopy still to be able to walk, and she tries but couldn't quite stay up right, so we laid her down. On the way home she threw up, this is the first time ever she has thrown up after sedation, I was on the freeway so I got to stop and let her finish and then she fell asleep. She has been asleep since and must really be out of it since its been three hours. I'm sure she will feel better when she wakes up and gets some food in her!
Sunday, August 5, 2012
I finally decided to bite the bullet and potty train Aubree. She has been ready for awhile and peeing out of her diaper because she would pee so much at once, I have been putting her on the toilet in the morning first thing cause she would always pee out in the morning. She is doing awesome, she's only had a couple of accidents and those were when she had to poop. But she has had no accidents the past couple of days so we are on out way, I am so excited!
Tuesday, July 31, 2012
It's been awhile since I posted here, life has been crazy with all sorts of stuff. Aubree is doing amazing, I don't even think about her cancer everyday anymore. She seems to have no effects from what happened except with her speech. She is in therapy, her comprehension is low and not where it should be. So we are working on that with her. She still won't eat much for me and prefers to drink her meals. But that has become normal and I don't push her much on it. Her speech therapist is going to start working on that, but she thinks there is something else going on with her that is making her not want to eat. It's crazy to think where we were just not even a year ago with her, she was on a feeding tube and not eating anything at all. So she is doing so much better this year.