Wednesday, June 29, 2011
For the most part they were all good. Her bone marrow showed that it was all Nelsons! YEA! Her blood under the microscope was clear of the Leukemia. They also did an even more sensitive test and that showed 0.02% that might be blasts. Since she is on her rejection drug and the steroids they are not sure if they are AML cells or not. They will probably repeat the test later on when she is off her rejection drug for a couple of months to see if these increase and if they can tell for sure what they are. She will not be off her rejection drug for another 4 months though so no use in stewing over the .02. They arent worried enough to try to hurry and get her off of her drugs to see so that is good.
The other thing that we found out is that she will probably be on her rejection drugs for at least another 4 months. That means no problems at all, and that just hasnt been the case for us, so probably longer. She will need her central line till she is off them also, because her body isnt very effective in absorbing magnesium because of the rejection drug, so she gets magnesium every night through her line.
They did start her taper again on her steroids so that is good. Also her red blood counts are normal and her hemoglobin is in normal range finally. We are still waiting for the platelets to be in normal range but they seem to go up every week. Her white count is "normal" but its not really, the steroids kind of screw it up and make it look high when its not. So that is all really good news!
We are so excited that she is doing so good. We are so happy with her results, and kind of bumbed that she has to have another bone marrow biopsy later, but we will take all the good news that we can get!
Wednesday, June 22, 2011
She is doing really good at home. She gets into everything around here. She is right on track for her age. Opening cupboards and pulling everything out, putting everything in her mouth. She keeps us busy. We are concentrated on getting her walking so that her hands arent all over the dirty floor. She still is not eating at all, she was drinking out of a sippy for a couple of days but that excitement as worn off and she is back to getting most everything through her feeding tube. It could be a very long road before she eats again, she just is not interested at all. But talking to people who have gone through chemo say that it messes with your taste buds and nothing sounds or tastes good and it takes awhile to wear off. So maybe when that does things will start to taste good and she will want more.
I was reading somewhere about childhood cancer statistics and here are some. 35 children per DAY are diagnosed with cancer, 1 out of 4 will not survive, 4 out of 5 that do survive will experience late effects from their treatment. Its hard to believe that on the same day that Aubree was diagnosed that 34 other families went through it with us. That was a horrible day for us, but so many others had a horrible day with that news also. If you look at my blog list I have I think 6 blogs linked there, two of those Angles did not make it, this is why I want to start to contribute to the fight to get help with research. There are things that can be done, and people are trying to find a cure, or just better treatment with better odds. But they need money to do it. This is why I am walking on July 9th with Curesearch. That organization gives 95% of what they make to the research of childhood cancer! Please join or donate to team Aubree! http://curesearchwalk.org/saltlakecity/aubreesfight
Thursday, June 9, 2011
Here is a video that Erin's Mom made for Cure Search. If you look to the side her blog is on the my blog list as Little Air Bear. She was diagnosed the same day that Aubree was born. We were in treatment at the same time. Erin is in remission, but her family still lives with the fear of relapse. If we could find a cure for childhood cancer then families wouldnt have to go through this!
Wednesday, June 8, 2011
Sunday, June 5, 2011
Here is a video of Children HERE in Salt Lake City who are going through treatment at this time. Help us find a cure. Come walk on July 9th at Liberty Park. If you cant come then help us by donating any amount, Or become a virtual walker. Join team Aubree. http://curesearchwalk.org/saltlakecity/aubreesfight
Friday, June 3, 2011
Cure Search is having a walk July 9th, they give 100% to childhood cancer research. Please join Aubree's team and we do not want children to go through what she has. Remeber that this vidoe was made before her transplant. There are many more months of pain that she has gone through since. Please help, donate anything. Be a virtual walker if you cant come, support Aubree! http://curesearchwalk.org/saltlakecity/aubreesfight
Aubree's blood cultures came back with no more bacteria in it. Taking out the line was what needed to happen. She will get her THIRD central line tomorrow. I am not sure when she will be able to come home but hopefully soon.