Wednesday, September 7, 2011

Finally, Aubree can have a BATH!

Here is Aubree yesterday as we were waiting to get her central line out. Yes, she got it out yesterday! We got a phone call on Tuesday from surgery wanting to know Aubree's medical history. Someone from the bone marrow team forgot to call us and let us know that she was going to have it taken out yesterday. I didnt care as long as she was getting it out! She also went to every two week appointments. We are so excited about that also. She is moving up and getting so much better.
I found this picture of the first time she had her line replaced and I couldnt believe the difference! It was a week after she got out of the hospital for her transplant at end of May, so a little over 4 months ago. It was before she was diagnosed with Graft vs Host and I remember checking in for this and having her throw up while I signed papers for the surgery. I had her on my lap holding the emasis basin with one hand up to her mouth and the other hand with a pen signing the papers. The girl checking her in was so impressed that I was doing it all. She looks so sick here, I cant believe that I never saw how sick she was while she was so sick! I am just so thankful that she is so much better and it happened so quickly!

Thursday, September 1, 2011

Good News

We got some really good news at the Doctors this week. They are going to schedule to have Aubree's central line taken out! YEA, I am so excited because she really needs a bath more than once a week, and she can get wet without me freaking out and its one more thing to being normalish again! She is doing so good. She is eating like a champ, being weened off her rejection drug and only on two other medications. So we are so happy with her progress. It has been such a long road and its nice to be able to just feel like we have a toddler not a sick child.