Aubree with her NG tube Here is a after picture of Aubree to show just how much water weight she has gained
Here she is just before chemo, its no wonder she cant move around!
The one way I know that Aubree is kind of processing the formula that is going into her stomach was the nasty stench of her poop today. It was so nice to smell the awful smell. The doubled the amount of formula going into her stomach from 3 mls to 6 an hour. That is the equivalent of just over 1 tsp an hour. She started to throw this much up so they have taken her down to 4 mls and hour. But she is taking all of her meds orally, well through her feeding tube. We are trying to have only positive experiences with her mouth and taking meds would not be considered positive. If she can keep down her 4 mls an hour and all her oral meds, the only thing left for her to do is be able to go two to three days without needing platelets and then she can go home! Even though I am so overwhelmed with the thought of taking care of her at home and all that it will require, my other kids need me home and I think it would be good for Aubree, so we are looking forward to coming home.