Aubree's line never did make it back to working right. We tried all day Friday, Saturday, and Sunday. But Monday morning we were back up at Primary's for her line to be replaced. This was supposed to be an in and out surgery, and it is for most people, but Aubree was having a hard time breathing, because of her cold that she has had for over 4 weeks, so the Anesthesiologist wanted to keep her over night to watch her. That night her Oxygen level kept dropping, and an xray showed junk in her lungs, so they wanted her to stay to be monitored. So we got to stay the next night also, she gets really congested and so that makes it hard for her to breath and it is still making her oxygen drop but they decided to let us go home anyway and just keep an eye on her. I have to get up a couple of times at night and put saline in her nose so that she can breath better. She's also been throwing up blood here and there and today she it was worse, so I got to call clinic today also. They said that we didnt have to go in, but that we will chat tomorrow to see how things are going. So far she's doing ok, she had a little blood the last time she threw up, so maybe we wont have to go in. They will probably want to do a scope on her to make sure that everything is ok in her throat and stomach, so we will see.
Other than that she is doing good, she is starting to really crawl and I am sure by this time next week she will be really fast. We have her feeds up to where she is only on them for 14 hours a day. She is making progress. They only thing that really has me worried is she refuses to eat anything by mouth. I have to shove things in to get her to eat. I know that I need to be patient, but I really want some normalcy, like the feeding tube out and her eating and not always connected to a back pack that we have to lug around all the time. I also hate calling clinic everyday with something new that has happened. I really struggle with when to call them and let them know when something has happened. I dont want to be the mother that is always calling for every little thing, but I dont want to be the mother that doesnt call and she gets really sick. Hopefully she stops having things that I feel the need to call and let the Doc's know that something happened. That we can go a couple of days with out having to be in clinic or at the hospital. Ugh..... I will stop my ranting there! :)