Sunday, March 20, 2011

What more can sores do?

When we were first starting to get ready for transplant the dr's were talking about how sometimes they would have to give two platelet transplant a day. I kind of laughed it off thinking that Aubree would never need something like that. But Aubree's sores are getting worse. They are chewing through her platelets so her sores are bleeding and cant clot off. This is why she is throwing up and pooping blood. She started getting two transfusions a day of platelets, but that didnt work either, her counts were still very low. So they Dr's decided to put her on a platelet drip. She gets platelets for 12 hours a day. Aubree has a double broviac, meaning that she has two tubes coming from her chest to run IV lines into. Platelets can only be given by themselves in a one of the lines, that means that all other medications have to be run in the other line. But not all the medications are capadable, so they decided to give her platelets for four hours and then off for four hours, making a total of 12 hours. In the morning its still a little tricky and they have to take her off of her IV nutrition to give all her medications, but she is only off for about 2 hours and then they can hook it back up again. Its crazy to see her IV pole it is full, if they need to add another pump they will have to get a bigger one. Today they also added a diuretic drip. She is gaining weight everyday no matter how much medication they give her to get it off her. So instead of giving her high doses at different times of the day, its easier on her kidneys to just have a constant stream of diuretics into her body. Hopefully she wont gain anymore weight. She is now over 2 kilos, almost 6 pounds. She looks like a little Buddha. They are also watching her liver really close because all her symptoms point towards liver trouble, but her blood tests do not show any signs. Her side that her liver is on is also enlarged, but they are doing what they would if she did have the trouble with her liver. They may increase the medication that they are giving her, and maybe increase her diuretic drip but that is all that they would do. They would really just try to help her through till her counts come back and her body can right its self. We are hoping that this week brings nothing new for her body because she wont en graft at least for another week and a half.

5 comments:

  1. Oh keep going Autumn!! You'll make it! And Aubree will be bouncing off the walls before you know it. You guys are so inspiring to me. Oh keep going guys! Love you!!

    ReplyDelete
  2. I wish there was something I could do to help you. This weekend was our stake conference and Elder Holland came. The whole theme ended up being about trials making you stronger. I know it is NOT what you want to hear right now, but you are turning out to be one of the strongest women I know. I love and admire you more than you could ever know!

    ReplyDelete
  3. That sounds terrible, Autumn. I hope things get better for her soon!

    ReplyDelete
  4. Autumn, this must be so difficult. It must be so frustrating to see Aubree so sick. I sure hope that her body and get the platelets sorted out, I had no idea they did a drip of platelets. CRAZY! I will say extra prayers for your family tonight. Keep going. You guys are amazing and you will see miracles and blessings. You aren't alone. Love you!

    ReplyDelete
  5. Autumn, we met at the ICS parent's lunch a few weeks back and we're on the facebook group together, but for some reason I have never had your blog address. Anyways... here I am now.

    I'm sitting here in tears after reading your last several posts since Aubree had her transplant. Your family is amazing - what a sweet, inspiring story Aubree's transplant from her brother is. Your son is a hero! We just had a big blood drive/service project in honor of our Elena's one year diagnosis anniversary on Saturday and we had a computer set up for people to join the bone marrow registry. We were trying to spread the word. It is something I feel so passionate about! It saves lives! The donors truly are hero - I just think it's amazing that you or I or anyone could be that one match someone has been searching for!

    And then reading about your sweet little baby being so sick is just breaking my heart. What a precious girl! I wish she didn't have to go through all of this. Your family - especially sweet little Aubree - is in our prayers! We are inpatient again this week and I hope I run into you, so I can say hi again and hear updates. Much love to your sweet, strong family!

    ReplyDelete